All Blogs Relating To "VCFS"

posted 03/15/2010, comments (0)

Fitting in.

I think this is a wonderful website, and it's great to be able to see and read about people that are facing similar obstacles.   In some ways, however, I feel as though I'm a bit different. I see people writing about feeling like they don't fit in, while I seem to have the opposite problem. I've always had to work a lot harder than others... Read more

posted 03/13/2010, comments (2)

New to Friends of Quinn.

Hey everyone! My name is Erin. This is my first blog entry on Friends of Quinn, so I thought I'd introduce myself a little. For the first 7 years of my life I walked around with a hole in my heart (literally). Once this was discovered I of course had open-heart surgery, and was soon thereafter diagnosed with VCFS. Around age 13 I had clef palate... Read more

posted 03/12/2010, comments (2)

Mission 22q in Nebraska

Another article about Mission 22q in Nebraska!   http://journalstar.com/news/local/article_d6f4d982-19ce-11df-9615-001cc4c03286.html    

posted 02/27/2010, comments (2)

I have learning disability and speech problem

Hi, my name is Janet Marsh im 25 yrs. old and I have a speech problem and S.L.D. I had a son named Elijah Caldwell Marsh he only had Di george syndrome and I had vcfs. Elijah was my first child my husband and I want to have more kids but were scared to have anymore. I can do anything that I want to do Im like a normal person just have a little bit... Read more

posted 02/21/2010, comment (1)

this is Brookie's blog address!!!

http://brookiesjourney.blogspot.com/   it is not completely up to date but I am working on it!!!