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posted 03/15/2010, comments (0)
I think this is a wonderful website, and it's great to be able to see and read about people that are facing similar obstacles.
In some ways, however, I feel as though I'm a bit different. I see people writing about feeling like they don't fit in, while I seem to have the opposite problem. I've always had to work a lot harder than others... Read more
posted 03/13/2010, comments (2)
Hey everyone! My name is Erin. This is my first blog entry on Friends of Quinn, so I thought I'd introduce myself a little. For the first 7 years of my life I walked around with a hole in my heart (literally). Once this was discovered I of course had open-heart surgery, and was soon thereafter diagnosed with VCFS. Around age 13 I had clef palate... Read more
posted 03/12/2010, comments (6)
step to 22q-11 deletion awareness starts for me here and now.
Starting on Thurs the 18th I will be on my local radio station 99 rock promoting the special olympics 6hr spin class called ride for a reason and I'm riding to support special olympics of vermont but I'm also riding it to help create awareness for 22q-11 deletion syndrome I'm very excited about this oppertunity please tune in if you can here's a... Read more
posted 03/12/2010, comments (2)
Another article about Mission 22q in Nebraska! http://journalstar.com/news/local/article_d6f4d982-19ce-11df-9615-001cc4c03286.html
posted 03/10/2010, comments (0)
Gay Marriage and the Rest of Us
My mother showed me this morning, an article about how gay marriage is now legal in Washington, DC. I always knew that one day it would happen; my mom had always told me that in forty years from now people are going to be thinking to themselves, "what were we thinking," as in not letting gay marriage being allowed. It just so happens that the... Read more
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