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posted 09/08/2010, comments (5)
Heart Monitor
While I was in Long Island the past few weeks, I have been having more of these black out episodes that I've written about previously. What happens is that I am awoken from sleep with nausea, and I almost go into an epileptic state for about two seconds. I had about three of them in the last four weeks. I even had... Read more
posted 09/08/2010, comments (0)
Mission 22q Wine-Tasting Fundraiser
Article in the paper about Mission 22q's wine-tasting fundraiser! http://journalstar.com/lifestyles/community-matters/article_68fcd066-babd-11df-86a2-001cc4c002e0.html
posted 09/08/2010, comment (1)
My last day on Long Island I went body boarding and it was pretty rough; it was just after hurricane Earl. After I had paddled out a few times, I started to get tied so I thought I would try and walk to the end of the jetty (rocks) and jump off at the end like a lot of surfers do. Well I got to the end and I was trying to figure out the... Read more
posted 09/07/2010, comments (0)
What to Do When Your Child is Diagnosed with a Learning Disability
Your child was recently diagnosed with a learning disability. What does that mean? What are you supposed to do now? What can you do to help? Will he (or she) be able to graduate high school? Attend college? Get and hold a job? A diagnosis of a learning disability brings as many questions as it answers. And it does answer questions. You have... Read more
posted 09/06/2010, comments (0)
Make Sure To Look For Your Child's Strengths
I was reminded by a good friend the other day, that even though our children with VCFS have a lot of difficulties, we cannot forget their strengths.
My son Jeff has some many strengths!
1. Everyone who meets Jeff, loves Jeff.
2. He can spell better than me!
3. He can... Read more
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A cousin has a child with DiGeorge Syndrome. Is this the same as vcfs?
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